We want our legacy to be a world without Parkinson’s

A gift in your Will could help us achieve this.

Leaving a gift in your Will to The Cure Parkinson’s Trust (CPT) will make a huge difference in our mission to find a cure for Parkinson’s. Leaving a legacy donation can be a tax efficient way of providing essential funding to the pioneering research facilitated and supported by CPT, and it will also provide vital support to other areas such as our regular research update meetings.

Our international Linked Clinical Trials (LCT) initiative is paving the way for new research into treatments which have the potential to slow, stop and reverse Parkinson’s. This project has thus far yielded promising and exciting results, but it can only continue with sufficient funding.

In 2014, a generous supporter 'Minnie' left The Cure Parkinson's Trust a large sum from the sale of her house in her Will. Minnie’s incredible legacy went towards funding the Simvastatin trial which is part of our LCT programme. This trial is still underway and is now moving into its third year. Dr Camille Carroll, leader of the Simvastatin trial, said:

“It was humbling to hear that a legacy donation helped to fund some of the Simvastatin Trial. The value of donations of this nature can really push forward research and help us get closer to finding a cure.”

The Linked Clinical Trials initiative has supported over ten different drugs into trial stage, including the type 2 diabetes drug Exenatide. This trial produced encouraging results in August 2017, which showed that patients taking the drug experienced improvements in their movement symptoms compared to patients taking the placebo. Professor Tom Foltynie, who led the trial at UCL, commented: “This is the strongest evidence we have so far that a drug could do more than provide symptom relief for Parkinson’s.”

A legacy donation could help fund aspects of the next trial phase for Exenatide as well as a host of other studies proposed by the LCT Committee, bringing new life-changing treatments ever closer to the clinic. Penny Kustow, a participant on the Exenatide trial, said: “The cost of reviewing, selecting and running clinical trials is enormous, but clinical trials are an essential part of the process of finding a cure for Parkinson’s. I urge everyone associated with Parkinson’s to specify a generous legacy gift in their Will for CPT, with the hope that our children, grandchildren and succeeding generations are not blighted by this ghastly disease.”

Leaving a gift in your Will can also help to fund our regular research update meetings. These meetings have proved an invaluable opportunity for people living with Parkinson’s (PwP’s) to stay informed and updated about our latest research  through talks from leading researchers in the field, as well as providing an invaluable space for PwP’s to meet with each other.

CPT supporter Brian Lowe was diagnosed with Parkinson’s in 2011, and regularly attends our research meetings.

“It’s very exciting to come away with some good new information and some great ideas for what may help us all in the future.”

Earlier this year, our spring research meeting took place at Bentley’s in London, where Professor Roger Barker (Cambridge University), Professor Huw Morris (UCL) and Dr Angie Kehagia presented. Our autumn research update meeting took place on 5th November 2018 at Deloitte and, as a result of a legacy left to CPT by another generous supporter, featured the first 'Alan Lewin Memorial Lecture' presented by Dr Alan Whone.

What can you do?

To leave us a gift in your Will, you simply need to include details of this planned donation. This can be done by writing a Will, by making an amendment or ‘codicil’ to an existing Will or by setting up a Trust.

You will need to have our charity name and number to leave a gift. Please also see our Jargon page which we hope might help you decipher some of the terminology associated with this process.

Full charity name: The Cure Parkinson's Trust.
Registered Charity Number: 1111816 (England & Wales) and SCO44368 (Scotland)

CPT has recently teamed up with The Goodwill Partnership to offer our supporters a discounted Will writing service. The process of making your Will is made extremely simple. There are no visits to the solicitor; a trained counsellor comes to your home to take your Will instructions at a time convenient to you, whether daytime, evenings or weekends. They guarantee the lowest price for a home-visit Will which is checked and provided direct to you by a panel firm of solicitors who can also provide legal advice and storage of your signed Will. You can arrange your appointment by visiting their website or by calling 0844 669 6148. Please quote The Cure Parkinson’s Trust.

If you would rather create your Will online we also partner with Farewill an online provider who can help create a Will for you at no charge.

For more information, please email Theresa Samworth or call 020 7487 3892.