Covid-19 Update

First and foremost in these unprecedented times we hope that everyone stays safe. This is a rapidly changing situation causing disruption and anxiety and The Cure Parkinson's Trust (CPT) is monitoring and responding to the COVID-19 crisis as it evolves.

We want to reassure the Parkinson’s community that, although we face considerable uncertainty, we are doing our very best to safeguard the financial health of the charity by accessing government support available through the Coronavirus Job Retention scheme. We furloughed the majority of our team, whilst maintaining core staff to ensure the efficient functioning of the charity. Please be assured that we remain resolute in our mission to slow, stop and reverse Parkinson’s and to improve the quality of lives of those living with the condition.

Our Research

We are in regular contact with the incredible research teams we fund globally and are offering our support, as we know researchers will now experience delays to their work. However the full impact of COVID-19 on the research community will only become more apparent in the months ahead.

Leaders of ongoing trials here in the UK are implementing the advice from their institutions and governments (e.g. GOV.UK and MHRA.) about the best ways to support current trial participants given the closure of institutions, the need for social isolation and therefore the inability of people living with Parkinson’s to attend clinical examinations.

Some of our new trials will not start recruitment until the health crisis is over.  

Our next deadline for new Research Grants is in October. Our grant review process involves the expertise of external experts to peer review applications and to attend Research Committee meetings and we are so grateful to all those who contribute to this process. However, the COVID-19 crisis will impact on our calls for applications as we are dependent on the availability of these external experts to support the process. 

There are some COVID related studies that have been launched online - Find out more here.

We do have a number of online survey studies that might be of interest to you and your support of these projects would be appreciated. Find out more here.

Our Events

We know that so many people have been training hard, planning and fundraising for an event that has been cancelled or moved. We are thinking of you during this challenging time. The generosity of people like you has helped us become the charity we are today and is what will help us get through this together. We are hugely grateful for all your effort and hard work – thank you. 

We have cancelled all our face to face events for the time being and are exploring creative ways to connect the Parkinson's community.  A great example of this is our collaborative activities with Parkinson’s UK for World Parkinson’s Day.

We have also seen some amazing efforts within the Parkinson's community to stay active and keep spirits up by sharing fun activities and ideas with #ParkinsonsTogether.

Living with Parkinson’s

Always, but especially at this time, the most important thing you can do is take care of yourself with everything that means for you:

  • put in place a solid and sustainable 'social distancing' regimen
  • take daily medications on time
  • eat well and stay hydrated
  • create a daily routine at home
  • keep moving, exercise as best you can
  • make sure you stay connected - speak to friends and family on the phone, set up videoconferencing with one or more people….. and take time away from the news and social media

In the video below, Dr Soania Mathur speaks about her Parkinson's and shares what she knows about novel corona virus, and offers advice for people with Parkinson's.

                                                                                                                                                            There is a wealth of information online please do look at some of the following links:  

The World Health Organisation is the most reliable source of information about COVID-19 and guidance on social distancing at this time:

And some useful resources from partner organisations:

Deputy Director of Research at The Cure Parkinson's Trust, Dr Simon Stott, has written a short piece COVID-19 in his online blog:

Larry Gifford is a Broadcaster on Global BC and oversees programming and operations for CKNW-AM and CHMJ-AM radio stations. He was diagnosed with young-onset Parkinson’s disease in August 2017 at the age of 45. Larry is active with the Parkinson’s Society British Columbia and sits on the board of directors for the Pacific Parkinson’s Research Institute. He runs a podcast platform and it's well-worth a listen:

https://omny.fm/shows/when-life-gives-you/playlists/podcast 

The following video was filmed a little while ago and is not related to COVID-19 but has some interesting and helpful information about exercise and Parkinson's from Physiotherapist Josefa Dominos